BOOKS
CAREGIVING:General information
Harvard Health Publications: A Guide to Alzheimer's Disease - Special Health Report. available at http://store.health.harvard.edu/hhp/cart/add.hhp?catalog-item-id=7
Perry, Angela American Medical Association Guide to Home Caregiving. John Wiley and Sons 2001
Loverde, Joy. The Complete Eldercare Planner. Silvercare Publications 1997
McFarlane Roger. The Complete Bedside Companion. Simon and Shuster 1998
CAREGIVING: Ethnic elderly populations
Coon D, Gallagher-Thompson D. Innovative Interventions to Reduce Dementia Caregiver Distress. New York. Springer 2003
Barressi C, Stull D. Ethnic elders and Long-Term Care. New York. Springer. 1993
Yeo G, Gallagher-Thompson D. Ethnicity and the Dementias. Washington DC. Taylor and Francis 1996.
Valle, R. Caregiving Across Cultures with Dementia Illness and Ethnically Diverse Populations. Washington DC. Taylor & Francis 1996
Gallagher-Thompson D. Development and Implementation of Intervention Strategies for Culturally Diverse Caregiving Populations in R. Schulz (Ed). Handbook on Dementia Caregiving (pp 151-183) New York. Springer 2000
HEALTH: Ethnic elderly populations
Linda G. Martin and Beth J. Soldo, Editors; Committee on Population, Racial and Ethnic Differences in the Health of Older Americans, National Research Council 1997.
HOME CARE
Carroll, David. When Your Loved One Has Alzheimer's: A Caregiver's Guide Based on Methods Developed by The Brookdale Center on Aging. New York: Harper and Row.
Confused Minds, Burdened Families: Finding Help for People with Alzheimer's and Other Dementias, # OTA-BA-403, Supt. of Documents, U.S. Government Printing Office, Washington, D.C. 20402.
Couper, Donna. Aging and Our Families: Handbook for Family Caregivers. Human Sciences Press, Inc.
Foster, Phyllis, ed. Therapeutic Activities With the Impaired Elderly.
The HaworthPress,NY.
Gruetzner, Howard. Alzheimer's: A Caregiver's Guide and Source Book. John Wiley and Sons.
McGuire, Francis A., et. al., Therapeutic Humor With the Elderly.
The Haworth Press, NY.
Portnow, M.D., et. al., Home Care for the Elderly: A Complete Guide.
McGraw-Hill.
Sheridan, Carmel. Failure Free Activities For The Alzheimer's Patient:
A Guidebook for Caregivers. Cottage Books.
Zgola, V., Doing Thomeings, A Guide to Programs and Organized Activities
for Persons with Alzheimer's Disease and Related Disorders, Baltimore,
Johns Hopkins University Press.
ADULT DAY CARE:
Lindeman DA et al. Alzheimer's Day Care: A Basic Guide, . New York: Hemisphere Publishing Corporation.
National Directory of Adult
Day Care Centers. Available at your local public library. To
order contact: Human Resources Publishing 3100 Highway 138; Wall Township,
NJ 07719-1442.--$149 + $6 shipping
Why Adult Day Care?
National Institute on Adult Day Care, 600 Maryland Avenue SW, West Wing
100, Washington, D.C. 20024.--FREE
NURSING HOMES/ RESPITE CARE
Tips on choosing Health Care providers and facilities are available at the Alzheimer's Association
Alzheimer's Association Publications
- Lincoln, Elizabeth. Choosing a Nursing Home for the Person with Intellectual
Loss. The Burke Rehabilitation Center.
- Mace, Nancy L. & Gwyther, Lisa P. Selecting A Nursing Home With
A Dedicated Dementia Care Unit.
Available at the
American Association of Retired
Persons
More tips on choosing a good nursing home
AARP Publications
- Choosing Good Care: A Family Guide to
Finding a Nursing Home (D17064)
- Solving Nursing Home Problems: A Guide for Families
(D17065)
For a free copy, send a request to member@aarp.org please include the publication title and stock number and your postal mailing address
LEGAL AND FINANCIAL ISSUES
Tomorrow's
Choices: preparing Now for Future Legal, Financial, and Health
Care Decisions. #D13479. Free from American Association of Retired People
Questions
& Answers When Looking for an Elder Law Attorney. Free
from the National Academy of Elder Law Attorneys, Inc., 655 N Alvernon
Way, Ste. 108, Tucson, AZ 85711.
Free literature from
Alzheimer's Association:
- Alzheimer's
Disease: A Legal and Financial Planning Guide
- Disability Documentation Kit
- Financial and Health Care Benefits
- Financial Services You May Need
- Legal Considerations for Alzheimer's
Disease
VIDEOTAPES
Living with Alzheimer's: Your New Video Survival Kit. A three-part video series for caregivers. Information on coping comes from experts in medicine, research, and caregiv-ing. to Long Island Alzheimer's Foundation, 382 Main Street, Port Washington, NY 11050 (516) 767-9446 to pay by credit card --$35 + $4.95 shipping
Alzheimers caregiver stress reduction method. Los Angeles: University of Southern California, Andrus Gerontology Center, 1990. 1 videocassette (34 minutes), with 73 page training manual.
Caregiver stress. Baltimore, MD: University of Maryland, 1987. 1 videocassette (25 minutes).
Family matters: caring for the caregiver. Chicago: Alzheimer’s Association, c1990. 1 videocassette (20 minutes). Also distributed as part of the Caregiver Kit (available from the Alzheimer’s Association).
Other victim: coping and caring techniques for the caregivers of Alzheimer’s patients. Omaha, NE: Creighton University School of Nursing, c1987; distributed by Health Sciences Consortium, Chapel Hill, NC. 919.942.8731. 1 videocassette (48 minutes).
MAGAZINES, JOURNALS, ARTICLES
Caregiver Handbook http://www.seniormag.com/caregiverresources/handbook/index.htm
Blyskal, J. Caring for aging parents: how to do what’s best and not burn out (part 1). McCall’s (September 1993), v.120(12), pp. 80-96.
Blyskal, J. When Mom can’t live alone: strategies for making the best decisions about elder care (part 2). McCall’s (October 1993), v.121(1), pp. 98-173.
Farran, C.J. & Keane-Hagerty, E. Twelve steps for caregivers. American Journal of Alzheimer’s Care and Related Disorders & Research (November-December 1989), v.4(6), pp. 38-41.
Spake, A., Newman, C., Newman, R., et al. The Drakes: one family’s story. Health (October 1993), v.7(6), pp. 48-50. (note: this whole issue is devoted to caring for aging parents)
EDUCATIONAL RESOURCES
STANFORD GERIATRIC EDUCATION CENTER provides a variety of ethnogeriatric programs and curriculum resource materials to educate health care professionals on the cultural issues associated with aging and health.
http://www.stanford.edu/dept/medfm/gec/page1.html
ETHNOGERIATIC CURRICULUM MODULES
Teaching modules in ethnogeriatrics produced by core faculty members
at Stanford Geriatric Education Center specific to their own disciplines.
They include: 1) objectives, 2) content, 3) Instructional and evaluation
strategies and 4)audiovisual materials..
http://www.stanford.edu/group/ethnoger/
FIND YOUR LOCAL CHAPTER OF THE ALZHEIMER'S ASSOCIATION
http://www.alz.org/findchapter.asp
THE NEWSLETTER FOR THE WORK GROUP ON MINORITY AGING
http://www.nia.nih.gov/news/wgma/
Caregiver training manuals in Spanish: http://www.alfa.org/public/articles/HablamosEspanol.PDF
Cultural Competency in Pharmaceutical Care Delivery: A Training Template for a One-Day Pharmacy Student Elective Course
http://futurehealth.ucsf.edu/pdf_files/Assemi_Cullander%202003%20Curricula-final.pdf
TOWARDS CULTURALLY COMPETENT CARE: A TOOLBOX FOR TEACHING COMMUNICATION STRATEGIES
http://futurehealth.ucsf.edu/cnetwork/resources/curricula/diversity.html
A Cultural Competency Training Template
http://futurehealth.ucsf.edu/pdf_files/Halfdaytemplate-network.pdf
Teaching Diversity and Cultural Competence in Health Care: A Trainer's Guide
http://www.mwelchatpodsdt.org/